“Letting people know that it’s ok to be your original self”: Talking about breast cancer & autistic community with Melanie Keiling

  I had such a heartfelt and illuminating conversation with Melanie, first about autistic online communities, then about combating sexism in the world of breast cancer care.

Listen to the audio by clicking the audio link below or on Stitcher here or  iTunes here

Read the transcript by lcicking the file below the audio.

Transcript by Julie Ann Lee: Transcript_Melanie_Keiling_Noncompliant

Melanie Keiling is an autistic mother of autistic children. She runs the blog Autistic Grandma, and campaigns for autistic human rights, and works with the autistic community directly to provide emotional support for individual self healing, self care, and personal development. Her goal is to create a stronger community by providing a platform for change in the way autism is viewed by the world, and to help gather autistics together to support one another.

The podcast
In the first half, Melanie and I talk about the Autistic Grandma social media group and the supportive role of autistic communities.

In the second half we dive into the topic of health care—specifically cancer care, and the biases that still exist within it, especially towards women and nonbinary people—and come up with some pathways towards changing things for the better.

Autistic Grandma page on Facebook

“Going Flat” After Mastectomy: Patient-Reported Outcomes by Online Survey. Dr. Jennifer Baker, et al. Annals of Surgical Oncology (2021)

Women Who ‘Go Flat’ After Mastectomy Report Being Generally OK With It. Kate Kneisel. Medpage Today. February 5, 2021. Study Authors: Jennifer L. Baker, Don S. Dizon, et al.

Flat closure after mastectomy: Are your patients satisfied with the results? Kimberly B Bowles. San Antonio Breast Cancer Symposium, Published February 2020.