Episode 46. Dr. Jackie Ryan on inclusive research & service models for intellectually disabled Canadians

I was so excited to speak with Dr. Ryan, a trailblazer in Canadian autism research! Her work was the first participatory autism research in Canada and it has inspired more. We talk about inclusion, autonomy, research methods, our collaborative work and how to improve services for intellectually disabled people in Canada’s west and throughout the world.

Listen to the audio below or on streaming services like Spotify ApplePodcasts & Pandora.
Read the transcript below the audio file.

Transcript coming soon!

Bio
Jackie Ryan is an autistic autism researcher with a PhD in Rehabilitation Science from the University of Alberta. Her recent doctoral research was about understanding self-determination and autonomy from the perspective of autistic adults with intellectual disabilities, using a community-based participatory research approach. Included in her research was the preparation of the Research 101 open-access training to build capacity for autistic people to collaborate more in autism research.

Sources
Being able to be myself: Understanding autonomy and autonomy-support from the perspectives of autistic adults with intellectual disabilities. Ryan, et al. Autism. 2024.

 

 

Episode 42. “How do we break down the barriers?” Anne Borden King, interviewed by Sean Pickard on Voices for Abilities

While the podcast is on a brief hiatus as I finish my book (yay!), I’m sharing this interview that Shawn Pickard hosted with me for Voices for Abilities radio. We discussed how Canadian autism policy needs to move from a charity perspective to a rights perspective and how the inclusion and neurodiversity movements are working for the changes that autistic people & families need.

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.

 

Bio
Anne Borden King is a Toronto-based podcaster, writer and human rights advocate. Her work has appeared in the New York Times, Healthy Debate, FactKeepers and Thinking Person’s Guide to Autism, among other publications. She is the host of Noncompliant, a popular podcast about neurodiversity. A co-founder of Autistics for Autistics, the Canadian autistic self-advocacy organization, she has presented before the United Nations and the Canadian Senate among others, on autism policy.

Her upcoming book, The Children Do Not Consent: The search for autism’s “cure”—and the kids who pay the cost will be published in 2023.