Understanding monkeypox–and social media misinformation: Interview with journalist Benjamin Ryan

Benjamin Ryan

This was such an interesting interview! Benjamin Ryan has been covering infectious disease and LGBTQ health for two decades. We talk about the positive changes we can see in public health today as a result of grassroots work during the HIV/AIDS crisis, as well as the need to do more education about the monkeypox crisis, health disinformation and its impact in the LGBTQ communities.

Listen to the podcast at the audio link below or on streaming services such as Spotify, Stitcher or iTunes.
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Bio

Benjamin Ryan is an independent science reporter who has been covering infectious disease and LGBTQ health for two decades. He has been covering the monkeypox outbreak for NBC News and has published opeds on the topic in the Washington Post. He also contributes to The New York Times, the Guardian and Thomson Reuters Foundation. You can check him out at @benryanwriter on Twitter or at benryan.net.

Links
Sex between men, not skin contact, is fueling monkeypox, new research suggests, by Benjamin Ryan (NBC, Aug 17, 2022)

Opinion: You are being misled about monkeypox by Benjamin Ryan (Washington Post, July 18, 2022)

Opinion: Gay men can fight monkeypox ourselves — by changing how we have sex by Benjamin Ryan (Washington Post, August 11, 2022)

Monkeypox misinformation spreading faster than the virus, experts say by Benjamin Ryan (NBC, August 15, 2022)

 

Talking about Covid, monkeypox, health disinfo & “the 2022 effect” with virologist Alex Greninger

Portrait photo of a white man with shhort broanhair in a blue dress shirt, smiling
Alex Greninger

I had an amazing conversation with University of Washington virologist Dr Alex Greninger, whose team innovated one of the earliest Covid tests. We talked about how they developed the test; public health policy; the current monkeypox crisis; other viruses & “the 2022 effect”; and the virological and sociological implications of the pandemic since 2020.

Listen to the podcast on the audio link below. Also available on Spotify, Stitcher or iTunes.

 

Bio
Dr Greninger is the Larry Corey Assistant Professor in the Department of Laboratory Medicine and Pathology, Assistant Director of the clinical virology laboratories at the University of Washington Medical Center, and a board-certified clinical pathologist. He earned an MS in Biological Sciences/Immunology from Stanford, a Master’s in Epidemiology from Cambridge, an MD/PhD from University of California San Francisco, and completed his laboratory medicine residency at the University of Washington.

Links
Info on the Monkeypox health crisis, from GMHC
News: Innovator of the Year awarded to directors of University of Washington virology lab 

Is there an Autism Industrial Complex? Interview with Professor Alicia Broderick

front cover of a book. Dark blue cover with words "THE AUTISM INDUSTRIAL COMPLEX: HOW BRANDING, MARKETING & CAPITAL INVESTMENT TURNED AUTISM INTO BIG BUSINESS  My guest this episode is Alicia Broderick, author of the new book The Autism Industrial Complex:  How Branding, Marketing, and Capital Investment Turned Autism Into Big Business. Her book traces the cultural, political, and economic history of autism. We talk about the history of autism services, how industry greed often gets in the way of useful approaches that can help families and some advice for families of newly diagnosed kids on how to find the best approaches and sift through all the hype.

Listen to the podcast by pressing Play on the audio file below. Also available on Spotify, Stitcher or iTunes.
Read the transcript at the link below the audio file
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Transcript by Julie-Ann Lee: Podcast_Transcript_0722_Broderick_Borden

Bio
Alicia Broderick is a Professor of Education at Montclair State University in New Jersey.

Links mentioned in the podcast

The Autism Industrial Complex:  How Branding, Marketing, and Capital Investment Turned Autism Into Big Business, by Alicia Broderick

Screams, Slaps and Love (Lovaas interviewed in Life Magazine).

Affirming resources for families

Start Here: A Guide for Parents of Autistic Kids, by the Autistic Self Advocacy Network (book & e-book)

Thinking Person’s Guide to Autism (website)

Uniquely Human, by Barry Prizant (book)

Neurotribes, by Steve Silberman (book

Algorithms and Outrage: Talking social media with Charles Arthur, author of Social Warming

In this episode, I interview Charles Arthur, the author of Social Warming: the dangerous and polarising effects of social media. We discuss the history of social media and current problems with social media, particularly disinformation on a global scale, as well as what we can do to combat this crisis.

Listen to the podcast via the audio file below, or on Spotify, Stitcher or iTunes here.

Read the transcript in the link below the audio file.
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Transcript by Julie-Ann Lee: Transcript_CharlesArthur_NCPodcast

Bio
Charles Arthur is a journalist who worked on daily national papers in the UK for twenty years, and has written three non-fiction books since 2011, including the one we’ll discuss, Social Warming. He met Bill Gates when Microsoft was small, Steve Jobs when Apple was smaller, and Larry Page (of Google) when Google was already pretty big. He’s visited the offices of Facebook and Twitter, but their CEOs remained elusive. He’s been freelance since 2014 and lives in southeast England.

“There are a lot of areas autism researchers have viewed as deficits that can actually confer advantages”: Talking with MIT researchers Anila D’Mello and Liron Rozenkrantz

I had an amazing conversation with Drs Anila D’Mello and Liron Rozenkrantz from MIT about their research review and other work about autism, rationality and cognition!

Listen to the episode by clicking the audio file below or on Spotify, Stitcher or iTunes here.

 Read the transcript below the audio file.
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Transcript by Julie-Ann Lee: Transcript_Noncompliant_Podcast_DMello_Rozenkrantz

Bios

February 3, 2020 — McGovern Institute for Brain Research at MIT. Photo by Caitlin Cunningham Photography.

Anila D’Mello is a cognitive neuroscientist interested in social cognition and language. She is currently a postdoctoral researcher in the Department of Brain and Cognitive Sciences at the Massachusetts Institute of Technology where she uses neuro imaging to examine how the brain learns from previous experiences to inform future behavior. She also uses personalized study designs to promote strengths-based approaches to studying social cognition and language in autism.

Liron Rozenkrantz

Liron Rozenkrantz is a neuroscientist interested in the role of beliefs and expectations on cognition and well-being. She is a postdoctoral researcher at the Simons Center for the Social Brain and conducts her research at the MIT Brain and Cognitive Sciences Department. Liron has been studying perception and cognition in children and adults with autism for the past 7 years. Her current line of research looks at “enhanced rationality” in autism and how autistic individuals seem to be less susceptible to cognitive biases.

Link
Rozenkrantz, D’Mello & Gabrieli: Enhanced Rationality in Autism Spectrum Disorder. Trends in Cognitive Science. July 2021.

Note
The Noncompliant podcast is taking a break from new episodes. To access previous episodes and other content, as well as updates on the podcast and the book, please visit this website.

“If you look at how much has changed in the last 5 years, we’ve definitely made progress”: A conversation with autistic lawyer Haley Moss

Haley Moss

I had such a great conversation with autistic lawyer Haley Moss about her book Great Minds Think Differently.

In this episode, we discuss neurodiversity in law and the workplace, autistic hyperfocus and Haley’s upcoming book, The Young Autistic Adult’s Independence Handbook (launching November 2021 & available by preorder)!

Listen to the episode at the audio link below or on Spotify,  Stitcher or iTunes here.

Read the transcript below the audio link.
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Transcript by Julie-Ann Lee: Transcript_Haley_Moss_NC_Podcast_0821
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Bio
Haley Moss is an openly autistic lawyer practicing in Florida. She was appointed to the Florida Bar Young Lawyers Division Board of Governors and the Florida Bar Journal Editorial Board. In addition to being a lawyer, Haley is a neurodiversity advocate and author. Her work has been published in The Washington Post, Huffington Post, Teen Vogue, Fast Company, and other media. She is the author of Great Minds Think Differently: Neurodiversity for Lawyers and Other Professionals and an upcoming book, The Young Autistic Adult’s Independence Handbook.

Links
Great Minds Think Differently: Neurodiversity for Lawyers and Other Professionals
The Young Autistic Adult’s Independence Handbook
Note: The Florida Bar Foundation’s “Developmental Disabilities & the Criminal Justice System,” referenced in the podcast, is not currently online: please contact the podcast if you want a pdf.)

On conflicts of interest in autism research: Interview with Kristen Bottema-Beutel and Micheal Sandbank

In this episode, I talk with Professors Kristen Bottema-Beutel and Micheal Sandbank, who have done a systematic review and meta-analysis of 151 group design studies of interventions for young autistic children. For this work, Dr. Sandbank was awarded the Young Investigator Award in 2021 from the International Society of Autism Research. Drs Bottema-Beutel and Sandbank have also done further studies into conflicts of interest (COIs) in autism research. Among their findings are that COIs are prevalent in several areas of autism research. They also found that ABA researchers, who frequently had conflicts of interest, reported these conflicts as rarely as 2 percent of the time.

We discuss what conflicts of interest are, the teams’ findings and some of the implications for autism research going forward.

Listen to the audio at the link below or on Stitcher or iTunes here.
Read the transcript, below audio file.

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Transcribed by Julie-Ann Lee: Transcript_Noncompliant_Bottema-Beutel and Sandbank

Bios

Photographed for Boston College by Caitlin Cunningham

Kristen Bottema-Beutel is an Associate Professor in the Lynch School of Education and Human Development at Boston College. Her research focuses on social and language development, and social interaction dynamics in autistic children and youth. She is interested in pairing qualitative and quantitative methods to better characterize autistic communication and sociality, and in developing community-based strategies to support meaningful engagement of autistic students. More recently, she has explored metascience topics such as researcher ethics and research quality in intervention research for autistic children. Dr. Bottema-Beutel is the director of the autism specialization at LSEHD, a program that prepares future special educators to support autistic students.

Micheal Sandbank is an Assistant Professor of Early Childhood Special Education at The University of Texas at Austin. She researches social communication and language interventions for young children with disabilities. Dr. Sandbank is the lead researcher on Project AIM , a scoping systematic review and meta-analysis of group design studies of interventions for young children on the autism spectrum. She was awarded the Young Investigator Award in 2021 for this work, from the International Society of Autism Research.

Links

Journal of Child Psychology and Psychiatry. Sandbank, et al. Research Review: Conflicts of Interest (COIs) in autism early intervention research – a meta‐analysis of COI influences on intervention effects

Journal of Child Psychology and Psychiatry. Bottema-Beutel, et al. Adverse event reporting in intervention research for young autistic children.

Journal of American Medical Association-Pediatrics. Sandbank, et al. IBI Intervention Recommendations for Children With Autism in Light of a Changing Evidence Base

“Co-Regulation is Key”: A Conversation with Occupational Therapist Greg Santucci

In this episode, I talk with Occupational Therapist Greg Santucci about the problems with ABA from his perspective as a practitioner, as well as new and better approaches in schools and the challenges of the post-pandemic period in education. An interesting and inspiring conversation!

Listen to the podcast at the audio link below or on Stitcher or iTunes here.

Read the transcripts, attached below the audio link.
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Transcribed by Julie-Ann Lee: Transcript_Noncompliant_Santucci

Bio
Greg Santucci
is a Pediatric Occupational Therapist and the Founding Director of Power Play Pediatric Therapy. He has been an OT for over 20 years, and currently is a Supervisor of Occupational Therapy at Children’s Specialized Hospital in New Jersey. Greg is the creator of the Model of Child Engagement and has been lecturing nationally for over a decade on topics related to sensory processing, child development, behavior and best practices in the public schools. He has dedicated his career to promoting neurodevelopmentally-informed, relationship-based interventions to help parents and teachers support children of all abilities and learning styles.

Links
Learn more about Greg’s work at https://gregsantucci.com/
Greg’s Facebook page: https://www.facebook.com/gregsantucciOT

“Most of the victims have to move on from these pathological relations”: Interview with Dr. Marc D. Feldman about medical child abuse

I had a very informative and thought-provoking conversation with Dr. Marc D. Feldman, an expert on medical child abuse and factitious disorder. We talked about medical child abuse, including Munchausen-by-proxy and the abuse of autistic children through autism pseudoscience. We also talked about interventions and supports, the need for education and what we all can do to stop the abuse.

Listen to the podcast right here by clicking the audio link below.
Full transcript below the audio link.

Listen to this episode on Stitcher here
Listen to this episode on iTunes here

 

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Transcript, by Julie Ann Lee: Feldman_Transcript_Noncompliant_The_Podcast

Bio
Dr. Marc D. Feldman is Clinical Professor of Psychiatry and Adjunct Professor of Psychology at the University of Alabama in Tuscaloosa. A Distinguished Fellow of the American Psychiatric Association, he is the author of 5 books and more than 100 peer-reviewed articles in the professional literature. Dr. Feldman is an international expert in factitious disorder, Munchausen syndrome, Munchausen by proxy, and malingering.

In his recent book, Dying to be Ill: True Stories of Medical Deception, Dr. Feldman, with Gregory Yates, has chronicled people’s acts and motivations in fabricating or inducing illness or injury in themselves or their dependents.

Links:
American Professional Society on the Abuse of Children (registration required for some resources but the content is free.

 

“People have the right to communicate in the method that is best for them, period.” An Interview with Derek Burrow

For this episode, I interviewed Derek Burrow, an Ottawa-based librarian, writer and tabletop RPG player who is part of a movement to normalize AAC and increase accessibility to it.

Listen at the audio link below, or on Stitcher here or on iTunes here

Read the transcript (link below audio file).

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Transcribed by Julie Ann Lee: Transcript_Noncompliant_Burrow
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Bio
Derek Burrow is an Ottawa-based librarian and freelance writer who is also deeply passionate about tabletop roleplaying games, with 25 years in the hobby. Derek uses augmentative communication, also known as AAC (specifically Proloquo4Text and Proloquo2Go) to communicate, and is  exploring how augmentative communication can be normalized within society and also incorporated into tabletop gaming. Derek wrote the latest support documentation for Proloquo2Go and Proloquo4Text. He is also involved in Autistics for Autistics, the Canadian autistic self-advocacy organization and as a consultant on accessible materials and services in Ontario.

About AAC
Augmentative and Alternative Communication (AAC) is any tool, system or strategy for communicating rather than verbal speech. AAC can include pictures; gestures; sign language; visual aids; speech-output devices like phones or iPads; and more. Augmentative and alternative communication (AAC) is an essential aspect of life for non-verbal and semi-verbal autistic people and communication access is a right. Unfortunately, many are still denied access to AAC, a topic we discuss in the podcast.

The episode
This interview is so informative, broad-reaching and thought-provoking. Derek and I talked about various aspects of AAC and his experiences before and after getting access to AAC, as well as AAC in tabletop roleplaying (RPGs).

We also talked about the social applications of the RPG model. As Derek said: “Everyone has strengths and weaknesses and in any group of people, someone is going to have a skill that no one else possesses. In gaming, we design characters around their strengths and the world is set forth in such a way as to let them succeed through them. That’s a far better model than real life where we are often put in places that attack our weaknesses and are expected to excel.” The best aspects of the RPG community are a model for our broader culture in creatively cultivating co-operation, valuing diversity and ensuring accessibility.

Because this was one of my first interviews, I was a bit nervous on the mic! But it was a great way to start off the podcast. I hope you enjoy it as much as I did.

Links from the conversation:
Deej, the movie

AAC right-to-access, legal cases

More about AAC